Update on genomics education programme’s primary care work

Primary care genetic projects

It has been a number of months since we were last in contact regarding the work the Genomics Education Programme is facilitating in terms of Primary Care Practitioners. There has, however, been no lack of effort behind the scenes to prepare to launch this important area of work.

Firstly, I would like to welcome and introduce you to Dr Jude Hayward (GP with a Special Interest in Genetics). Jude has been recruited as the Primary Care Advisor to the Genomics Education Programme. Jude will be familiar to a number of people within the group as she has worked with Dr Imran Rafi and Dr Nadeem Qureshi on a number of Primary Care Genetic projects.

The first two pieces of work that Jude will be leading on are outlined below. These activities follow on from the discussions held at our initial meeting last year and will indicate the priority areas for any educational development work.

1. Identify the genomic consultations GPs are likely to encounter and the knowledge GPs will need in order to conduct these consultations.

We will be using the modified Delphi technique to develop a consensus view from a range of stakeholders including GPs, GPs with a Special Interest in Genetics, GP Educators, Clinicians working in Genetics (including Geneticists and Genetic Counsellors) and Genetic Educators. This work will commence in the next few weeks - please let us know if you would like to be involved or know of anyone who you think should be involved.

These findings will continue the work started by yourselves where an initial list of genomic consultations was drafted.

I am also aware that a number of you at the August meeting indicated that you would like to hold focus groups with GPs to explore the topics outlined above. At the time we indicated that the Genomics Education Programme could provide some financial support for the delivery of these focus groups. This offer still stands so please contact me directly with a breakdown of proposed costs if you would like to explore this further.

2. Genomic Medicine Centre (GMC) Educational activity in Primary Care.

This area of work follows on from the meeting where we started to collate the face-to-face educational activity conducted by the different GMCs and map the educational resources used by each GMC. A more sophisticated survey has now been developed, and will be circulated to each GMC Education and Training Lead in July.

If you have any questions, or would like to contribute to any of these specific projects, please contact either myself or Jude Judith.Hayward@bradford.nhs.uk .

We would like to thank you for your interest in this area, and hope that you will still continue to be part of this informal steering group.

Many thanks, Michelle Bishop and Jude Hayward, HEE Genomics Education Programme, Health Education West Midlands

E. Michelle.Bishop@wm.hee.nhs.uk

W. www.genomicseducation.hee.nhs.uk | www.hee.nhs.uk